Friday, October 24, 2014

Event Notice: Cystic Fibrosis Foundation's The Meat Ball

There are times when you hear things that just wake you up - when I met with Leslie Lucas, Development Director for the Cystic Fibrosis Foundation - I woke up. (the frappe might have helped)

What is Cystic Fibrosis?Cystic fibrosis is a life-threatening genetic disease that affects the lungs and digestive system of approximately 30,000 children and adults in the United States. More than 10 million Americans are unknowing, symptomless carriers of a defective CF gene.

This disease affects little kids - so if you've ever seen a little kid with what looks like a life vest on but with tubes hanging out of it - that little kid probably has CF. Imagine being that little kid - wearing a vest that beats on your chest to knock the mucus off. Oh and those kids have to eat like 5000 calories a day - a snack for them is butter rolled in sugar! These kids can't even bond with each other because being in the room with another CF patient could be deadly to them. 

Why do we need to support CF? 

Reason 1: Because there aren't enough people in the US with this deadly disease - so the government doesn't provide support.

Reason 2: They're getting closer to a cure! In the past two years they have made HUGE strides that are helping so many kids with CF - if we keep supporting them - it could be wiped out!!! 


So how can you help? 

The Meat Ball is one of many great fundraisers they do (ever heard of Run Like Hell? :-)) - I am super excited about it because it's food related! It's a 5 course chef's gala where chefs get a course and a meat and they go to town! I can't wait to go (and share the recipes with you!)

This year it's November 1 at the new Renaissance Hotel in Downtown Cincinnati. Tickets are $200 each ($148 tax deductible) and they'll have dinner, auctions and dancing - sounds like so much fun!

 Visit to learn more.

If the $200 price tag is too much - you can also donate your time or participate in their other events - like Run Like Hell! 

Spread the word - let's wipe out this disease together! 
Post a Comment